Met with Kenneth's doctor today. It is noted that Kenneth's tone has decreased and we will not put him back on baclofen. Kenneth's tone is lesser than prior to ASCT while on baclofen. Range of motion has improved a lot. They do believe (although no scientific proof) that baclofen may interfere with the neuro development and process of ASCT. Also, we have decided to refit Kenneth with hinged AFO’s.
Spoke with Kenneth’s teachers and para today. All three have stated that Kenneth is more calm, relaxed, and starting to use his pincher fingers in doing tasks as trying to write and picking up small objects. They feel that Kenneth has made progress and improvements since ASCT.
Summing up an improvement cognitively and reduced tone and fine motor skill development.
I can’t wait to see what’s next and what time will bring us. I find this "scientifically not proven" procedure very interesting and very rewarding.
David
Back on the hunt for a fabulous new Carer for Meg
12 years ago
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